In this special "EDS Awareness Month" episode of the Bendy Bodies podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of
Ehlers-Danlos syndrome.
Takeaways
EDS Awareness Month is an opportunity to educate and raise awareness about Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and related conditions.
Healthcare professionals must listen to their patients and believe them, even if a clear diagnosis has not yet been established.
Teachers, daycares and nannies can play a crucial role in identifying hypermobility conditions in children.
Coaches and athletic instructors should be aware of the signs of EDS in athletes and dancers and provide resources for further assessment and support.
Several myths about EDS, such as the misconception that EDS does not cause pain and that only geneticists can diagnose it, should be debunked.
Early intervention and appropriate treatment are crucial for better patient outcomes. Mast cell activation syndrome (MCAS) is an important condition to be aware of in environmentally sensitive people, even if their tryptase levels are not elevated.
Understanding and empathy are crucial in relationships where one partner has EDS or HSD, as this condition can lead to dynamic disability and varying needs.
Communication is essential in relationships, and using mirroring techniques and conversation boundaries can help improve understanding and compassion.
Employers and co-workers should show support and offer accommodations to people with EDS, such as checking in with them, granting them grace, and making the workplace more accessible.
Increased awareness of EDS and related conditions is essential to foster empathy, support and better partnerships in healthcare, workplaces and society.
Other useful videos for you
86. The Unjust Journey of EDS with Amanda Cassil, PhD:
https://youtu.be/_KiZf5100p4?sieyOyNazMZ5t1pxE5
82. The Impact of Clinician-Associated Trauma on EDS and HSD with Colin Halverson, PhD:
https://youtu.be/GSAKJRx0BgY?sivrPX9-fPnMht-GBo
95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD:
https://youtu.be/Fu3mzL2rg4U?sit9SQMRGWQgxPjb9T
Chapters
00:00 Introduction and EDS awareness month
09:30 Identify hypermobility conditions in children
31:06 Early intervention and appropriate treatment
42:04 Supporting people with EDS in the workplace
54:59 The importance of awareness and empathy for EDS and related conditions
Connect with YOUR Bendy specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.
Thank you very much for listening. We hope you found this episode informative, inspiring, useful, enriching and enjoyable. Join us in the next episode for YOUR moment to improve your knowledge about hypermobility disorders and people who suffer from them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR flexible body is our biggest priority!
#EDSAwarenessMonth #EDSAwareness #EhlersDanlosMyths #HSD #MCAS
#Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD
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About the Bendy Bodies Podcast
Are you affectionately known as “Gumby” among your friends and family? Being "double-jointed" isn't just a weird trait: It can lead to a host of problems throughout the body, even if you were once "flexible" but no longer are. Connective tissue disorders, such as Ehlers-Danlos syndrome (EDS), often go unrecognized by doctors, causing life-altering symptoms such as pain, frequent injuries, giving joints, fatigue, gastrointestinal problems and insomnia.
Welcome to the Bendy Bodies Podcast, hosted by EDS expert Dr. Linda Bluestein, a board-certified physician with expertise in anesthesiology and clinical pain management in patients with hypermobility disorders. Join us as we delve deeper into topics relevant to anyone suffering from symptomatic joint hypermobility. From in-depth discussions with specialists with diverse expertise to practical tips for optimizing your hypermobile health, we're here to help you on your journey to wellness.
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